I am a wife and mother with a rare disorder called Hereditary Hemorrhagic Telangiectasia(HHT)and sometimes called Osler-Weber-Rendu. It is a rare genetic disorder of the blood vessels. A person with HHT has a tendency to form blood vessels that lack the capillaries between an artery and vein. These blood vessels rupture and bleed. The Brain, Colon, Lungs, Nose and Liver are effected.